SciTech

"Mercy Killing" of Severely Disabled Newborns Debated in Britain

profwhat.

Posted to SciTech on Thu Nov 09, 2006 at 09:41:08 AM EST (promoted by Acefantastik). RSS.

According to Britain's Royal College of Obstetricians and Gynecology, "a very disabled child can mean a disabled family."  That's why the College has invited a debate into the mercy killing of newborn disabled babies.

New medical advances make it possible to keep more disabled children alive longer than before, but the RCOG wonders whether it is worth the trouble.  In their report (PDF) they argue that the early "mercy killing" of such children "might have an impact on obstetric decision-making, even preventing some late abortions, as some parents would be more confident about continuing a pregnancy and taking a risk on outcome."

"I think it is morally wrong to strive to keep alive babies that are then going to suffer many months or years of very ill health," said Joy Delhanty, professor of human genetics at University College London.  Opponents counter that mercy killing is ethically unworkable: "The majority of doctors and health professionals believe that once you introduce the possibility of intentional killing into medical practice you change the fundamental nature of medicine. It immediately becomes a subjective decision as to whose life is worthwhile," said John Wyatt, consultant neonatologist at University College London hospital.

Tags: Written by profwhat, health, ethics, bioethics, UK, edited by Ace (all tags)

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1

Why do I see a bright line being crossed?

MayorBob.

Thu Nov 09, 2006 at 10:14:21 AM EST

1.00

From his office on the Princeton campus, bioethicist Peter Singer is shouting "Amen, brothers."  As he's so eloquently written, it's never to late in the game (or too early) to take a human life as long as those around it feel that it's an inconvenience.

 

Illegitimi non carborundum.

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Re: Why do I see a bright line being crossed?

Thalia.

Thu Nov 09, 2006 at 04:09:58 PM EST

5.00 (interesting, astute, interesting)

What does "intentional killing" mean in medical parlance anyway?  Apparently, it's considered acceptable to withdraw food & water, and let the person starve to death slowly, but it's not OK to add enough morphine into their IV-drip to let them drift peacefully to sleep.  I find this particular distinction to be rather ludicrous.  Either we do everything possible to keep someone alive, or if there is no chance and the person wishes to end it, we should let them die, peacefully.  I now know one man who is not in jail only because he was old & sick when he gave his wife, who was dying by inches of cancer, a lethal dose of the morphine she was on for pain relief.  Would it have been better for anyone at all for her to have spent another month on a continuous morphine drip, half awake, half alive, and in pain whenever conscious?  I don't think so.

I also know a woman who gave birth to an baby with anencephaly, with half its brain missing.  She went through birth, and watched her child fed by machines, knowing there was no chance it could survive.  Should she have been allowed to let the baby die, in peace, instead of suffering for four days?  (According to her doctors since the baby's brain was missing cognitive function it was not suffering.  But the mother certainly was.)

It's high time we allow this discussion to happen, instead of reflexively flinching from a hard subject.

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Re: Why do I see a bright line being crossed?

MayorBob.

Thu Nov 09, 2006 at 08:44:55 PM EST

none

My point is that, with the pre-natal technology we have and that we will have in the future, there really isn't any reason for a woman to have to carry a fetus to term which will be born with severe birth defects like anacephaly.  Obviously, I don't know this woman and you do, but my wife the nurse informs me that any person born with that severe a set of physical limitations would not be force fed by machine unless the parent insists that the medical staff do everything to keep it alive.  What makes you think that patients in extremis, without hope of recovery, aren't over medicated to allow them to die without pain?  Certainly not in a case as sensational and the subject of media attention like Terri Schiavo, but it happens often enough for the obscure, the quiet, and to those willing.  The doctors and nurses just don't try to draw attention to it and grandstand like Jack Kevorkian.

Illegitimi non carborundum.

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Re: Why do I see a bright line being crossed?

Thalia.

Thu Nov 09, 2006 at 10:35:58 PM EST

none

In these particular cases, I know because I knew the individuals involved at the time.  I have heard that some hospices do permit overmedication, but from what I gather most do not.

Thalia

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Re: Why do I see a bright line being crossed?

MayorBob.

Fri Nov 10, 2006 at 07:20:57 AM EST

1.00

From the "limitations of this study" part of your link:

"Only 3299 of the 6642 doctors approached completed the survey. The views and practices of doctors who did not participate may differ from those of the doctors who did participate. The accuracy of doctors' responses to surveys on this sensitive issue is not known."
Now, you have a population of professionals whose core values is to "do no harm" to human life and they're asked if they would euthanize someone if they were asked.  What sort of answer might one expect.  I find it remarkable that over 30 percent said they would consider such a request.

 

Illegitimi non carborundum.

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a hard subject.

permazorch.

Fri Nov 10, 2006 at 10:04:49 AM EST

none

My grandmother died a very long death. Her body was healthy. It was her brain that took a powder, and made an early exit. Although it wasn't Alzheimer's, the dementia took the "her" out of her. Her slow exit was made at "the old-folks home", not with family, though we visited regularly. But, when her own grandmother went down those same tracks, it was at home, and she talked to dolls and called them her children, among other surreal tales.

Well, guess what? My own mother is in her mid-sixties, and if she follows the matrilinear path, in less than 20 years her own brain will betray her "soul".

Let's just say euthanasia was legal. I don't know that I'd have the sheer guts to give mom that long kiss goodnight, even if it was as simple as driving her up to the mountains and leaving her with adequate camping gear for an able-bodied human with 2 neurons to rub together. I certainly wouldn't want to turn responsibility over to the state, or a nursing home.

Death is a hard, sad and inevitable fact of life. It freaks me out. Let's keep having this discussion, because the real world is spinning as a constant troublemaker.

----- The earth may fail, but we will quiver

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Re: a hard subject.

Thalia.

Fri Nov 10, 2006 at 01:24:24 PM EST

none

My mother and I have had this discussion.  I certainly am not leaving her on any mountain top.  We're not Spartans, you know.  But I absolutely am sure that I would help her not have to be physically there when she is mentally not.  It's certainly her biggest fear about aging.  If I help, it's going to be by being there, and helping her die peacefully in her own bed, surrounded by her own family.  Not by letting her starve to death in some hospital.

Thalia

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Re: a hard subject.

permazorch.

Fri Nov 10, 2006 at 04:22:18 PM EST

none

I'd say it's my biggest fear, too.

----- The earth may fail, but we will quiver

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Re: Why do I see a bright line being crossed?

coquito.

Thu Nov 09, 2006 at 10:27:24 AM EST

none

The newspaper reported that the college was not formally calling for active euthanasia to be introduced, but wanted the mercy killing of newborn babies to be debated by society.

I think that's perfectly reasonable, and far from crossing a bright line. Take away the doctors, the medical establishment, all of it. Think about a family with a newborn child. Imagine the most terrible affliction you can call to mind, then ask yourself honestly if that family won't have to consider killing that child to keep it from suffering. I think this is a perfectly human problem, and as such, there's no reason we shouldn't talk about it. It's not pretty, but neither are many other things we've discussed and continue to discuss as a society, like when it's acceptable to kill another adult (in self-defense, in war, as capital punishment), etc.

I can imagine that, for myself, there could be situations in which I would rather spare my child the suffering of some affliction or other. I'm not talking about hang-nails here. I would hate to be locked into a situation in which doing what I think is right is considered unthinkable (and therefore likely highly illegal), simply because other people refuse to think about it.

Now with caps!

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Re: Why do I see a bright line being crossed?

nmiguy.

Thu Nov 09, 2006 at 12:49:13 PM EST

none

it's never to late in the game (or too early) to take a human life as long as those around it feel that it's an inconvenience.

I better look over my shoulder.  I feel pretty expendable.  

3

Kill em all and let the hospital sort them out?

wetkarma.

Thu Nov 09, 2006 at 10:39:40 AM EST

none

 I am in a general a supporter of euthanasia - but at the discretion of the person involved or the person's family.

Life is a fatal condition. There is no known cure, so its a matter of degrees when deciding when life is not worth living. Such nuanced decisions are best left in the hands of families with input from the medical community, and NOT decided by the medical community on behalf of families.

Memory is a strange bell, jubilee and knell.

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Re: Kill em all and let the hospital sort them out

Thalia.

Thu Nov 09, 2006 at 12:39:25 PM EST

none

I don't think anyone is arguing that the decision should be made by the patient and/or family.  But right now, that is absolutely not the case.  Doctors will not even discuss the possibility of letting someone whose life expectancy is 3 months of pain and suffering or even less die.  "We have to do everything medically possible," or "we cannot assist in ending a life" is the refrain.  Letting doctors talk about the possibility that sometimes, it is best for the person and their family to end suffering seems to be the goal here.  And I think that is a very worthwhile goal.

Thalia

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Re: Kill em all and let the hospital sort them out

wetkarma.

Thu Nov 09, 2006 at 02:17:05 PM EST

none


Letting doctors talk about the possibility that sometimes, it is best for the person and their family to end suffering seems to be the goal here.  And I think that is a very worthwhile goal.

I am not a doctor Thalia, but I'm skeptical that the goal here is to allow doctors the freedom to engage in a philosophic discussion on when it might be appropriate to end the lives of kids. There is (it seems to me) a -purpose- in broaching this subject for discussion. And that purpose is self-evidently the idea of creating some sort of framework wherein euthanasia for kids can be conducted.

Memory is a strange bell, jubilee and knell.

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Re: Kill em all and let the hospital sort them out

Thalia.

Thu Nov 09, 2006 at 03:45:44 PM EST

none

It sounded closer to a framework that would allow the doctors to have this conversation with the patient's family.  

Thalia

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Re: Kill em all and let the hospital sort them out

coquito.

Thu Nov 09, 2006 at 02:38:46 PM EST

none

Doctors will not even discuss the possibility of letting someone whose life expectancy is 3 months of pain and suffering or even less die.  "We have to do everything medically possible," or "we cannot assist in ending a life" is the refrain

That certainly seems to be the case in the U.S. (for the most part). But I wonder how things are different in the U.K.? Perhaps their reading of the Hippocratic Oath is a little different, and there is already more acceptance of death in their medical culture.

Now with caps!

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